Massage Therapy Considerations for EDS and hEDS

Suzan D. Walker LMT 104331
Nov 7
3 min read

Doctor in white coat, smiling, talking to a woman across a desk with a laptop and medical items. Bright, clinical setting. — A doctor discusses Ehlers-Danlos Syndrome (EDS) and treatment options with a patient in a healthcare setting.

Ehlers Danlos Syndrome, including hypermobile EDS, is a connective tissue disorder that affects collagen, joint stability, skin integrity, and overall mobility. Over the years I have noticed more clients who have this condition, and many are seeking massage therapy to help manage pain, tension, and daily discomfort. Massage can be supportive, but it requires a thoughtful and individualized approach.

Unfortunately this condition is not talked about enough. Many people are just starting to learn about it through TikTok and other social media platforms. EDS can impact daily life, it can be disabling for some, and it is often misdiagnosed or overlooked by many healthcare providers. It is also important to note that women are significantly more likely to be misdiagnosed or dismissed when it comes to EDS compared to men, which creates additional challenges in getting proper care. By being aware of the signs and having the right information, you are better prepared to ask your doctor about this condition. The sooner you receive an accurate diagnosis, the better your care and long term health outcomes can be.

If you have been diagnosed with EDS or suspect that you may have it, it is important to share this information with your healthcare professionals. This includes your general practitioner, chiropractor, and massage therapist. Because EDS affects connective tissue, certain techniques, pressure levels, and stretches may need to be adjusted. There are also important contraindications and risks that must be considered to ensure your comfort and safety.

If you are new to massage therapy, I approach your session with extra care. Techniques may be gentler, joint movement is performed with awareness, and I use limited stretching due to the risk of overstretching or increasing joint instability. If you already receive regular massage and comfortably tolerate deeper work, I usually continue with your preferred routine unless you request changes or new symptoms arise.

Signs You May Notice If You Suspect EDS

Only a healthcare professional can diagnose this condition, but some common signs include constant muscle and nerve pain, fatigue, joint hypermobility, jaw issues, frequent injuries, subluxations, a history of dislocations, soft or stretchy skin, poor wound healing, and unexplained bruising. If these patterns sound familiar, consider discussing them with your doctor.

Talking to Your Healthcare Team

When you speak with your doctor, ask if they can provide a referral to a specialist who can properly assess and diagnose EDS. Clear communication is key. Share your symptoms openly, including any changes in pain, joint stability, or how your body responds to massage, stretching, or physical activity.

It is also important to understand that EDS can involve a wide range of health concerns, including issues related to arteries, veins, and the heart. These risks are not the same for everyone, but they are part of why getting a correct diagnosis matters. In emergency situations, knowing that you have EDS helps doctors choose appropriate imaging, medications, and treatment approaches that are safer for people with connective tissue disorders. This is one of the many reasons why, if you suspect you may have EDS, it is important to advocate for testing and proper evaluation.

There are also certain medications and treatments you should discuss with your healthcare provider if you have or suspect EDS. Some medications, including fluoroquinolone antibiotics like Cipro, may carry additional risks for individuals with connective tissue concerns. Your doctor can help guide you on what is safe for your specific situation.

Clients with EDS can benefit from massage therapy, and my priority is to provide a safe and restorative session that respects your unique needs. With communication, awareness, and mindful techniques, massage can be a comfortable and supportive part of your wellness routine.

Disclaimer

This information is for educational purposes only and is not a substitute for medical advice. Ehlers Danlos Syndrome and hypermobile EDS require evaluation and diagnosis by qualified healthcare professionals. If you suspect you may have this condition, please consult your doctor and request a referral to a specialist. Always inform your healthcare providers, including your massage therapist, of any diagnosed or suspected medical conditions before receiving care.

With care and support,

Suzan (Susan) Walker LMT